Thursday 16 August 2012

Adapted from 'Beyond Empathy's' recent status that I totally agree with...


Yes I have fibro / #CFS and yes i can achieve pain control with a rediculus amount of drugs that will soon enough get into my body so much that even the highest of doses will not affect me. These may also condemn me to bed needing full care as im so i have absolutely no function or meaning in my life whatsoever, fully reliant on others to turn me, feed me and wash me. 


I have no psychiatric issues and confirmed by psychiatric specialists. I have never been, or never will be 'depressed' I have low moments but my life will never involve depression. 


I choose to LIVE, and therefore choose to constantly balance my life / pain on a strict routine. I take as few meds as possible to maintain my function though live every day and replace meds with herbals as much as possible. I don't eat/drink certain things and have my days mapped out with strict routine. This pushes my mind to the edge, exhausts me, but I do it. And j
ust because i have now dared to venture from my bed to attempt to have a life and contribute a difference to the world. Does not mean my exhaustion or agony has improved/ lessened/ or strangely disappeared!!!!

I have ventured from my bed and being indoors from days on end to make a life for myself, yes people see me out and about - make up/hair done and a smile on my face but what they need to realise is what they don't see is the most important statement of illness. Just because we are ill, doesn't mean we choose to share it with you. 

1 comment:


  1. EXACTLY, this helps me to remember that I too am entitled to live, no matter how hard the state and the media choose to make it for me. THANK YOU.

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